There is already a large amount of evidence looking at people feel about the use of patient data. Here are some key findings and links to recent studies.
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Almost four in five of the public (77 per cent) say they would be willing to allow their medical records to be used in a research study if they were anonymised.
Wellcome Monitor (Wave 3)Public attitudes to commercial access to health data (Wellcome 2016)
A slight majority (53%) of people would be happy for their data to be used by commercial organisations if it was for research, but most people were extremely wary of insurance and marketing companies accessing even anonymised information
https://wellcome.ac.uk/publicattitudesRoyal Statistical Society
The RSS commissioned two surveys around the theme of data democracy and understanding (2014)
The data trust deficit: Trust in data and attitudes toward data use and data sharing in the UKA summary, slides, and tables from the research are available
Attitudes to using and linking administrative data for research
ESRC and Office for National Statistics (2013)
Dialogue on Data: Exploring the public’s views on using linked administrative data for research purposes